Publications

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Displaying 1 through 50 of 75 publications.

Shore S, Ervin C, Kosa K, Fehnel S, Salberg L, Butzner M, Heitner SB, Jacoby D, Saberi S. Qualitative interview study of patient-reported symptoms, impacts and treatment goals of patients with obstructive hypertrophic cardiomyopathy. BMJ Open. 2024 Sep 17;14(9):e081323. doi: 10.1136/bmjopen-2023-081323

Pandya AG, Amoloja T, Bibeau K, DiBenedetti D, Kosa K, Butler K, Kornacki D, Ezzedine K. Assessing participants' experiences with vitiligo from patient interviews. Dermatol Ther. 2024 Sep;14(9):2467-78. doi: 10.1007/s13555-024-01241-w

Paller AS, Siegfried EC, Marron SE, Clark M, Harris N, Kosa K, Qin S, Whalley D, Chao J, Bansal A, Chuang CC, Wang Z. Skin pain and sleep quality numeric rating scales for children aged 6 months to 5 years with atopic dermatitis. J Eur Acad Dermatol Venereol. 2024 Jun 29. doi: 10.1111/jdv.20199

Martin S, Kosa K, Podgrabinska S, Garg A, Oral EA, Yildirim Simsir I, Brown RJ, Ozen S, Pagovich O, Srinivasan D, Sanchez RJ. Qualitative interviews describing the patient experience of individuals with generalized lipodystrophy enrolled in a clinical trial of mibavademab. Poster presented at the Endocrine Society (ENDO) 2024; June 1, 2024. Boston, MA.

Gaudiani L, Sikirica S, Hardin MB, Ervin CM, Goss DS, Kosa KM, Gopinathan S. Patient-reported burden of disease in diabetic peripheral neuropathic pain: learnings from in-depth patient interviews, sub-study of RELIEF-DPN 1. Poster presented at the American Diabetes Association's 84th Scientific Sessions; June 21, 2024. Orlando, FL. [abstract] Diabetes. 2024 Jun; 73(Suppl 1):484.

Blumenfeld A, Mordin M, Kosa K, Castro C, Stokes J, Shah D, Buse DC. Exploring the experience of neck pain in individuals with episodic migraine. Poster presented at the International Neurotoxin Association 7th International Conference (TOXINS 2024); January 17, 2024. Barcelona, Spain. Previously presented at the American Academy of Neurology (AAN) 2023 Annual Meeting.

Gibble TH, Kosa K, Basnyat B, Martin S, Moses R, Dubinsky M. Patient perspectives on symptoms and impacts in Crohn's disease: results from qualitative research. Poster presented at the European Crohn's and Colitis Organisation (ECCO) 2024; February 21, 2024. Stockholm, Sweden. [abstract] J Crohns Colitis. 2024 Jan; 18(Suppl 1):i265.

Gibble TH, Kosa K, Basnyat B, Martin S, Moses R, Dubinsky M. Cognitive debriefing of a patient-reported outcome measure for abdominal pain and loose stool frequency in Crohn's disease. Poster presented at the European Crohn's and Colitis Organisation (ECCO) 2024; February 21, 2024. Stockholm, Sweden. [abstract] J Crohns Colitis. 2024 Jan; 18(Suppl 1):i572.

Blumenfeld A, Mordin M, Kosa K, Castro C, Stokes J, Shah D, Buse DC. Exploring the experience of neck pain in individuals with episodic migraine. Poster presented at the 17th European Headache Congress (EHC) 2023; December 6, 2023. Barcelona, Spain. Previously presented at the American Academy of Neurology (AAN) 2023 Annual Meeting.

Phillips T, Lugtenburg P, Kalsekar A, Mutebi A, Wang A, Blaedel J, Kosa K, Martin S, Sacchi M, Kilavuz N, Thieblemont C. Improvements in patient-reported outcomes in relapsed or refractory large b-cell lymphoma patients treated with epcoritamab. Clin Lymphoma Myeloma Leuk. 2023 Nov 27;24(3):e78-e87.e. doi: 10.1016/j.clml.2023.11.005

DiBenedetti D, Kosa K, Waters HC, Oberdhan D. Understanding patients' experiences with borderline personality disorder: qualitative interviews. Neuropsychiatr Dis Treat. 2023 Oct 9;19:2115-25. doi: 10.2147/NDT.S423882

Joly F, DasMahapatra P, DiBenedetti DB, Kosa K, Hill QA. Development of the cold agglutinin disease symptoms and impact questionnaire (CAD-SIQ). Eur J Haematol. 2023 Aug;111(2):211-9. doi: 10.1111/ejh.13984

Kosa K, Mutebi A, Wang A, Blaedel J, Sacchi M, Martin S. Improvements in symptoms, impact of treatment, and satisfaction with treatment among patients with relapsed or refractory b-cell non-hodgkin lymphoma treated with subcutaneous epcoritamab. Poster presented at the ISPOR 2023 Conference; May 8, 2023. Boston, MA. [abstract] Value Health. 2023 Jun; 26(6 supplement):S315. doi: 10.1016/j.jval.2023.03.1800

DiBenedetti D, Huang M-Y, Kosa K, Suthoff E, Bonthapally V, Lasser R, Pollack M, Doherty J, Mak C, Cutler AJ, Mattingly GW. Assessing individuals' experiences with zuranolone for major depressive disorder: qualitative interviews with participants from the open-label shoreline study. Poster presented at the 2023 ASCP Annual Meeting; May 31, 2023. Miami Beach, FL.

Blumenfeld AM, Mordin M, Kosa KM, Castro CV, Stokes J, Shah D, Buse DC. Exploring the experience of neck pain in individuals with episodic migraine. Poster presented at the American Academy of Neurology (AAN) 2023 Annual Meeting; April 23, 2023. Boston, MA.

Khan AH, Kosa K, De Prado Gomez L, Whalley D, Kamat S, Clark M. Content validation of patient-reported sleep measures and development of a conceptual model of sleep disturbance in patients with moderate-to-severe, uncontrolled asthma. Patient Relat Outcome Meas. 2023 Mar 23;14:57-71. doi: 10.2147/PROM.S392666

Trennery CL, Martin S, Kosa K, Demetriou L, Joshi AV. Patient perceptions of treatment success in uncomplicated urinary tract infection. Poster presented at the IDWeek 2022; October 22, 2022. Washington, DC. [abstract] Open Forum Infect Dis. 2022 Dec; 9(Suppl 2):S917-8. doi: 10.1093/ofid/ofac492.1861

Trennery C, Kosa K, Joshi A, Demetriou L, Martin S. Applying established methods to evaluate the meaningfulness of PRO endpoints to endpoints defined by Clinician-reported Outcomes (ClinROs): an example of uncomplicated Urinary Tract Infection (uUTI). Poster presented at the ISOQOL 29th Annual Conference 2022; October 19, 2022. Prague, Czech Republic. [abstract] Qual Life Res. 2022 Nov 25; 31((Suppl 2)):S132. doi: 10.1007/s11136-022-03257-1

Joly F, DasMahapatra P, Su J, DiBenedetti D, Kosa K, Hill QA. Creation of a cold agglutinin disease (CAD) specific patient-reported outcome (PRO) symptom measure. Poster presented at the 84th Annual Meeting of the Japanese Society of Hematology; October 14, 2022. Fukuoka, Japan.

Paller A, Siegried E, Marron SE, Clark M, Kosa K, Whalley D, Chao J, Bansal A, Sun Y, Chuang C, Wang Z. Development and validation of a caregiver-reported numeric rating scale for measuring sleep quality in children aged 6 months to <6 years with atopic dermatitis. Poster presented at the 2022 Society for Investigative Dermatology (SID) Annual Meeting; May 19, 2022. Portland, OR. [abstract] J Invest Dermatol. 2022 Aug; 142(8 supplement):S42. doi: 10.1016/j.jid.2022.05.256

Paller A, Siegfried E, Marron SE, Clark M, Kosa K, Whalley D, Chao J, Bansal A, Chuang CC, Wang Z. Development and validation of a caregiver-reported numeric rating scale for measuring sleep quality in children aged 6 months to 5 years with atopic dermatitis. Poster presented at the 2022 Society for Investigative Dermatology (SID) Annual Meeting; May 2022. Portland, OR.

Pandya AG, Amoloja T, Bibeau K, DiBenedetti D, Kosa K, Butler K, Kornacki D, Ezzedine K. Assessing participants' experiences with vitiligo from qualitative interviews. Presented at Innovations in Dermatology; April 27, 2022. Scottsdale, AZ. Previously presented at the 2022 Global Vitiligo Foundation Annual Symposium.

Pandya AG, Amoloja T, Bibeau K, DiBenedetti D, Kosa K, Butler K, Kornacki D, Ezzedine K. Assessing patients' experiences with vitiligo from qualitative interviews. Poster presented at the 2022 Virtual Maui Derm for Dermatologists; January 24, 2022. Maui, HI.

Joly F, DasMahapatra P, Su J, DiBenedetti D, Kosa K, Hill Q. Development of a cold Agglutinin disease-specific patient-reported outcome symptom measure. Poster presented at the 2021 63rd American Society of Hematology (ASH) Annual Meeting & Exposition; December 13, 2021. [abstract] Blood. 2021 Nov 23; 138(supplement 1):4057. doi: 10.1182/blood-2021-147199

Su J, Kosa K, DiBenedetti D. Patient-reported disease burden: in-depth interviews of patients with CAD. Poster presented at the 2020 Virtual 62nd ASH Annual Meeting and Exposition; December 6, 2020. [abstract] Blood. 2020 Nov 5; 136(Suppl 1):29-30.

Wood D, Kosa K, Brown D, Ehrlich OG, Higgins PDR, Heller C. Preferences of adult patients with inflammatory bowel disease for attributes of clinical trials: evidence from a choice-based conjoint analysis. Crohns Colitis 360. 2020 Jan;2(1). doi: 10.1093/crocol/otz048

Bernstein C, Kosa KM. Framing messages to motivate consumers: example for thermometer use. Presented at the 2019 Consumer Food Safety Education Conference; March 7, 2019. Orlando, FL.

Thomas E, Bernstein C, Blitstein JL, Kosa KM. Characteristics of consumer-focused public health campaigns: a systematic review. Poster presented at the Consumer Food Safety Education Conference (CFSEC); March 2019. Orlando, FL.

Kosa KM, Cates S, Brophy JE, Godwin S, Chambers D, Chambers E. Using survey data to distinguish handling practices of raw poultry between older adults and parents to develop targeted messages. Poster presented at the 2019 Consumer Food Safety Education Conference; March 2019. Orlando, FL.

Kosa KM, Cates SC, Brophy J, Godwin S, Chambers D, Chambers E. Older adults and parents of young children have different handling practices for raw poultry. J Food Prot. 2019 Feb;82(2):200-6. doi: 10.4315/0362-028X.JFP-18-323

Cates S, Godwin S, Brophy JE, Kosa KM, Chambers E, Chambers D. Consumer response to "Don't Wing It!" web site on safe handling for raw poultry. Poster presented at the International Association for Food Protection (IAFP) Annual Meeting; July 10, 2018. Salt Lake City, UT.

Kosa KM, Cates S, Brophy JE, Godwin S, Chambers D, Chambers IV E. Older adults and parents have different handling practices for raw poultry. Poster presented at the International Association for Food Protection (IAFP) Annual Meeting; July 9, 2018. Salt Lake City, UT.

Giombi KC, Kosa KM, Rains C, Cates SC. Consumers' perceptions of edible marijuana products for recreational use: likes, dislikes, and reasons for use. Subst Use Misuse. 2018 Mar 21;53(4):541-7. doi: 10.1080/10826084.2017.1343353

Lynch MM, Squiers LB, Kosa KM, Dolina S, Read JG, Broussard CS, Frey MT, Polen KN, Lind JN, Gilboa SM, Biermann J. Making decisions about medication use during pregnancy: implications for communication strategies. Matern Child Health J. 2018 Jan;22(1):92-100. doi: 10.1007/s10995-017-2358-0

Kosa K, Cates S, Capogrossi K, Rains C. Labeling of edible marijuana products needs improvements. Poster presented at the American Public Health Association (APHA) Annual Meeting & Expo; November 5, 2017. Atlanta, GA.

Gourdet C, Giombi KC, Kosa K, Wiley J, Cates S. How four U.S. states are regulating recreational marijuana edibles. Int J Drug Policy. 2017 May;43:83-90. doi: 10.1016/j.drugpo.2017.01.018.

Kosa KM, Giombi KC, Rains CB, Cates SC. Consumer use and understanding of labelling information on edible marijuana products sold for recreational use in the states of Colorado and Washington. Int J Drug Policy. 2017 May;43:57-66. doi: 10.1016/j.drugpo.2017.01.006

Kosa KM, Cates S, Godwin S, Chambers E. Barriers to using a food thermometer when cooking poultry at home: results from a national survey. Food Prot Trends. 2017 Mar;37(2):116-25.

Blitstein JL, Cates SC, Hersey J, Montgomery D, Shelley M, Hradek C, Kosa K, Bell L, Long V, Williams PA, Olson S, Singh A. Adding a social marketing campaign to a school-based nutrition education program improves children's dietary intake: a quasi-experimental study. J Acad Nutr Diet. 2016 Aug;116(8):1285-94. doi: 10.1016/j.jand.2015.12.016.

Kosa KM, Cates SC, Bradley SR, Godwin S, Chambers D. Consumer shell egg consumption and handling practices: results from a national survey. J Food Prot. 2015 Jul;78(7):1312-9. doi: 10.4315/0362-028X.JFP-14-574

Williams PA, Cates SC, Blitstein JL, Hersey JC, Kosa KM, Long VA, Singh A, Berman D. Evaluating the impact of six Supplemental Nutrition Assistance Program Education interventions on children's at-home diets. Health Educ Behav. 2015 Jun;42(3):329-38. doi: 10.1177/1090198114558589

Cates S, Kosa K, Godwin S, Chambers E, Bradley S. Americans' food safety practices for raw poultry and shell eggs: areas for improvement. Poster presented at the 2015 IAFP European Symposium and Food Safety; April 20, 2015. Cardiff, United Kingdom.

Cates SC, Kosa KM, Brophy JE, Hall A, Fraser A. Consumer education needed on norovirus prevention and control: findings from a nationally representative survey of U.S. adults. J Food Prot. 2015 Mar;78(3):484-90. doi: 10.4315/0362-028X.JFP-14-313.

Schmitt CL, Allen JA, Kosa KM, Curry LE. Support for a ban on tobacco powerwalls and other point-of-sale displays: findings from focus groups. Health Educ Res. 2015 Feb;30(1):98-106. doi: 10.1093/her/cyu046.

Hersey JC, Cates SC, Blitstein JL, Kosa KM, Santiago Rivera OJ, Contreras DA, Long VA, Singh A, Berman DA. Eat Smart, Live Strong intervention increases fruit and vegetable consumption among low-income older adults. J Nutr Gerontol Geriatr. 2015;34(1):66-80. doi: 10.1080/21551197.2015.1007199

Kosa KM, Cates SC, Bradley S, Chambers E, Godwin S. Consumer-reported handling of raw poultry products at home: results from a national survey. J Food Prot. 2015 Jan;78(1):180-6. doi: 10.4315/0362-028X.JFP-14-231.

Cates SC, Godwin S, Kosa KM. Innovative approaches to educate older adults and those who care for them about foodborne illness prevention. Presented at the 2014 Food Safety Education Conference; December 4, 2014. Washington, DC.

Kosa KM, Cates SC, Hall AJ, Brophy JE, Fraser A. Gaps in food safety professionals' knowledge about noroviruses. Poster presented at the International Association of Food Protection Annual Meeting; July 2013. Charlotte, NC. [abstract] J Food Prot. 2014 Aug; 77(8):1336-41. doi: 10.4315/0362-028X.JFP-13-550

Kosa KM, Cates SC, Ball M, Godwin SL, Coppings RJ. Consumers' response and preparedness to ensure food safety during extended power outages: findings from a national survey. International journal of food safety, nutrition and public health. 2014 Jul 17;5(1):34-45. doi: 10.1504/IJFSNPH.2014.063503

Cates S, Santiago OJ, Hersey J, Blitstein J, Kosa K, Singh A, Berman D. Eat Smart, Live Strong intervention increases fruit and vegetable consumption among low-income older adults. Poster presented at the 2014 Society for Nutrition Education and Behavior Conference; July 2014. Milwaukee, WI. [abstract] J Nutr Educ Behav. 2014 Jul; 46(4):S103-4. doi: 10.1016/j.jneb.2014.04.025