Gutierrez LP, Moy E, Eagle C. Use of the registry methodology in a rare disease setting: the Familial Adenomatous Polyposis (FAP) Registry-based study. Poster presented at the 22nd International Conference on Pharmacoepidemiology & Therapeutic Risk Managemen; August 2006. Lisbon, Portugal. [abstract] Pharmacoepidemiol Drug Saf. 2006 Aug; 15(1):S216-464.